Treating Post Polio Paralytic Sequelae

This site is dedicated to all who have an interest in paralytic conditions impairing limbs, in particular polio, post polio syndrome, with an emphasis on post polio paralytic sequelae.

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Wednesday, June 3, 2009

Please volunteer to translate if you can - Help Make Information on Surgical Treatment Options for paralytic post polio patients available

More information is available at:

http://knol.google.com/k/phil-kongtcheu/helping-make-surgical-treatment-options/24v2kgtuvzk2v/17#

or by clicking on the title. The particpation form is the link below.

http://spreadsheets.google.com/viewform?formkey=cklwQkdzX01GOFJ6c2Z2MUU5b3hyQlE6MA..

Thank you!
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4 U!

"I myself have been through this ordeal, and I am a symbol of what can happen when people with disabilities are strongly supported."
Franklin Delano Roosevelt

While there are a number of very laudable and powerful foundations and international organizations focused on the eradication of the disease, and we reference them here, our focus on this site is more on making life better for those who end up with permanently paralyzed limbs, contractures, spasticity and other musculoskeletal deformations and weakening.

Here you will find links to resources and sources of inspiration.

We are looking at medical approaches to make life better, we are initiating or pioneering research, we are linking up with all those who have similar interests.

So, while we speak primarily of polio here, therapeutic resources highlighted here may be of interest to people with Cerebral Palsy, ALS, spinal Cord injures, strokes,and other rare diseases that weaken muscular functioning

Please Consider Donating to Help this Effort Continue

I would like to keep this effort going on and significantly enrich this site over time.. If you are sympathetic to these efforts, consider donating here as little or much as you can afford to using your normal credit card or your paypal account.


Introduction to Polio - Polio Eradication

What is polio?

What is Paralytic Polio?

The Global Polio Eradication Initiative

The Rotary International's End Polio Campaign

The Bill & Melinda Gates Foundation on Polio

Support: http://shotatlife.org/




Post Polio Treatment Links & News/>

Polio Sequelae Treatment Centers in the World that I know of

On Contractures, Hamstring Contractures


David Werner's Disability Information Resources


Vaccine associated paralytic Poliomyelitis (VAPP)


Definitions of Time and Recovery in Paralytic Polio Convalescence


On Polio


Nothing About Us Without Us - Book Online


Post Polio Health International

Abilities Expo

About Me

Unknown
View my complete profile

My Books

Statement of Beliefs

Anyone who has dealt with paralytic polio knows the daily struggle it represents. After a while many accept their life with their disability and stop the struggle toward a better day. This site is for those who have not given up. This site is for those still seeking a path to a better day. Your plight attracts little public attention. Most physicians have no clue how to effectively help you.

I am convinced that all functional or visible impairments associated with paralytic polio can be successfully remedied using a holistic approach combining:
- Surgical procedures to transfer muscles and nerves to paralyzed areas,
- orthopedic surgeries to correct bones deformities or asymmetries,
-Nutrients rich diets emphasizing nourishing/repairing the nervous system,
-temporary and targeted orthopedic braces
-Physical therapy to consolidate muscle strength in affected areas where they are still functional

-Various forms of ointments and massage, including acupuncture and moxibustion

To that end I will share what I believe are helpful stories, testimonies and references for further explorations.

Profile


Lighthearted poem of mine "Like I used to be" that nonetheless says things...

Art Prints
Profile

NY TIMES HEALTH COLUMNS

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Welcome!

I was unfortunate or fortunate to have my right foot paralyzed after a bout of polio when I was about 6 months old in the early seventies. It was a time when polio had all but disappeared from the face of the developed world after Jonas Salk's development of the polio vaccine in 1952. I hope here to:

- Enhance awareness to the various ways in which the aftermath of this disease affect patients' lives and the lives of those who surround them,

- Get more testimony from fellow patients or support groups.

- Get expert advice and support from various practitioners and interested parties.

- Share my own experiences struggling through this condition and the coping strategies I have developed.

-Use the site to cheer other people in similar conditions while cheering myself up.

- Leave a record of my trial and error process.

I look forward to hearing from all of you!

Baudelarian Spleen

Josh Groban- Remember Me(Troy)

Inspiring Stories

Eileen Gruba tells here more eloquently than I probably could many of the feelings and situations that I have experienced myself so I have picked hers as a permanent feature story to educate the public at large


Polio: Eileen Grubba's Story
Riveting Story: In the Shadow of Polio

Salute to Bill & Melinda Gates Foundation and Rotarty International

Important Reference Links


NY Times Reference Pages on Polio

The Gates Foundation on Polio

Rotary International on Ending Polio

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