Showing posts with label post polio syndrome. Show all posts
Showing posts with label post polio syndrome. Show all posts

Sunday, November 27, 2016

Polio & The Development of the Field of Physical Therapy



I just wanted to share this remarkable article by Donald A. Neumann, PT, PhD in the Journal of Orthopaedic & Sports Physical Therapy, 2004 Volume:34 Issue:8 Pages:479–492  titled: Historical Perspective—Polio: Its Impact on the People of the United States and the Emerging Profession of Physical Therapy showing how the field of physical therapy emerged as a profession as a result of to address the public health challenge posed by the epidemic of polio in the first part of the 20th century in the United States.

Writes the author: "the polio epidemic was one of the most influential factors to transform a profession of revered ‘‘reconstruction aides’’ of the First World War era ... to a profession of physical therapists as recognized today. From the design of the Hubbard tank to the evolution of manual muscle testing, our response to treating persons with polio has left many permanent impressions on the practice of physical therapy, both technical and philosophical"

Article Abstract: 

Admittedly, it may appear incongruous that a review of a disease that infected the nervous system of persons in the first half of the twentieth century would appear in the Journal of Orthopaedic & Sports Physical Therapy at the start of the twenty-first century. As will be described, however, most of the physical therapy procedures developed during the polio epidemic involved muscles and their interaction with the skeletal system. Many of the treatments and rehabilitation philosophies created during this time are still very evident today. The “polio days” presented an enormous challenge and an equally enormous opportunity for the budding profession of physical therapy.
Much of the growth had to do with timing. Managing the rehabilitation of hundreds of thousands of persons, many in the prime of their own lives or careers, required just the services that a physical therapist could potentially provide. In essence, the polio epidemic created a unique void in the medical arena-a void that was filled by the rapid expansion of the profession of physical therapy.
A full appreciation of the impact that the polio epidemic had on the profession requires a history lesson of the many interrelated and concurrent events that transpired in this country between 1916 and 1955. Within these turbulent times, the United States experienced 2 world wars, the Great Depression, the Korean War, and the insidious rise and swift fall of the polio epidemic-one of the most significant public health epidemics ever to strike the United States. For more than 2 decades leading up to the success of the Salk vaccine in 1955, the treatment and care of persons with polio dominated virtually every aspect of the physical therapy profession.
The full story of how the growth, politics, philosophy, and even “personality” of physical therapy were shaped by the interactions between physical therapists and those infected by polio has been well chronicled. Two notable works are a recent article by Dr Marilyn Moffat and a very well presented text, Healing the Generations: A History of Physical Therapy and the American Physical Therapy Association, by Ms Wendy Murphy. This present historical review, intentionally less global than the aforementioned works, focuses more on the poliovirus itself, its impact on those it infected, and, most importantly, on several important lessons and benefits gained by the profession's steadfast involvement with the epidemic.
J Orthop Sports Phys Ther. 2004;34(8):479–492. doi:10.2519/jospt.2004.0301







Monday, August 30, 2010

Becoming an Empowered Patient

This post is prompted by the interview of the book "The Empowered Patient" by Elizabeth Cohen.

I like the theme of such books because they are particularly appropriate for people with unusual conditions or diseases. Most of the time the treating physicians one goes to see have very little familiarity with your condition. In this context, it is particularly important to do extensive research on one's condition, actively look for the right physicians and learn to listen to one's body to channel physicians' help in the right direction.

In particular for complex conditions such as paralytic polio sequelae, one must break the treatment into different specialties and seek the help of each specialist to address the specific symptom. In this case one must act as a general manager who uses various specialists as consultants.

Indeed for the sufferers of the various sequelae and after effect of polio, this is particularly the case.




Monday, March 29, 2010

Soliosis - John F Kennedy Johnson Rehabilitation Institute

I spent a day today at the John F Kennedy Johnson Rehabilitation Institute in Edison NJ on a referral continuing my post summer rehabilitation treatment. During that visit I learned that continuing pain that I attributed mostly to leg discrepancy is actually due to scoliosis in my spine. I have done some research online and I found this really good site on scoliosis that I recommend to anyone interested in the condition http://www.iscoliosis.com/. They also have some great videos at http://www.iscoliosis.com/video.html?filename=exercise-exercise. Even though physical therapy provides some relief, it seems there are only two possible permanent treatment solutions to scoliosis, bracing or surgery.
Scoliosis is a frequent condition among post paralytic polio survivors.
The Hospital for Special Surgery in New York seems to be a center of excellence for the treatment of spinal conditions. See: http://www.hss.edu/spine-care-institute.asp

Check Out:

JFK Johnson Rehabilitation Institute
http://www.iscoliosis.com/
http://www.hss.edu/spine-care-institute.asp

Tuesday, June 23, 2009

Post-polio syndrome - Wikipedia, the free encyclopedia

I just wanted to feature Post Polio Syndrome (PPS) as a specific condition more generally known in Western Countries that adds to the struggle of paralytic post polio survivors


Post-polio syndrome - Wikipedia, the free encyclopedia: "Post-polio syndrome
From Wikipedia, the free encyclopedia


Introduction


Post-polio syndrome (PPS, or post-poliomyelitis syndrome) is a condition that affects approximately 25–50% of people who have previously contracted poliomyelitis—a viral infection of the nervous system—after recovery from the initial paralytic attack. Typically the symptoms appear 15-30 years after the original infection, at an age of 35 to 60. Symptoms include acute or increased muscular weakness, pain in the muscles, and fatigue.

The precise mechanism that causes PPS is unknown. It shares many features with the post-viral chronic fatigue syndrome, but unlike that disorder it tends to be progressive, and as such can cause a tangible loss of muscle strength.[2] Treatment is primarily limited to adequate rest, conservation of available energy, and supportive measures, such as leg braces and energy-saving devices such as powered wheelchairs, analgesia (pain relief) and sleep aids.



Signs and symptoms


After a period of prolonged stability individuals who had been infected and recovered from polio begin to experience new signs and symptoms, characterised by muscular atrophy (decreased muscle mass), weakness, pain and fatigue in limbs that were originally affected or in limbs that didn't seem to have been affected at the time of the initial polio illness.[3] PPS is a very slowly progressing condition marked by periods of stability followed by new declines in the ability to carry out usual daily activities.[4] Most patients become aware of their decreased capacity to carry out daily routines due to significant changes in mobility, decreasing upper limb function and lung capability. Fatigue is often the most disabling symptom; even slight exertion often produces disabling fatigue and can also intensify other symptoms.[5] Problems breathing or swallowing, sleep-related breathing disorders, such as sleep apnea and decreased tolerance for cold temperatures are other notable symptoms.[3]

Increased activity during intervening healthy years between the original infection and onset of PPS can amplify the symptoms. Thus, contracting poliomyelitis at a young age can result in particularly disabling PPS symptoms.[6]"

Wednesday, March 25, 2009

John Hope Franklin, Black Historian, Dies at 94 - Obituary (Obit) - NYTimes.com - About Heart Failures in Blacks and Post Polio

John Hope Franklin, Black Historian, Dies at 94 - Obituary (Obit) - NYTimes.com

Reading about John Hope Franklin's death (A very fine and admirable man) today led me to investigate Congestive Heart Failure. In 2007, after surgery on my leg, I experienced heart failure and was kept in emergency care with daily IVs and put on respirators for the best part of my over four months hospitalization.

It happened as I just woke up in the middle of night unable to breathe and called the nurse. She checked my pulse and heartbeat rate which were alarmingly low. She called then called the attending physician and the rest for me was history.

As I read the article at http://www.medicinenet.com/congestive_heart_failure/article.htm, I am taken aback by the descriptions which mirror my experience. As long as I can remember, I have had an instinctive preference for multiple pillows when sleeping.

"Symptoms of heart failure include shortness of breath, which occurs with exertion as the disease progresses. Lying flat increases blood return to the heart; thus patients may complain of shortness of breath (orthopnea) when lying down. Another symptom is paroxysmal nocturnal dyspnea, a term used to describe wakening in the middle of the night with shortness of breath that is more long-lasting than simple orthopnea. Patients often describe having to stand by a window to try to catch their breath. Patients end up sleeping on two or three pillows to elevate the head and chest, or in a recliner.

Increasing shortness of breath can be tempered by the medications; however, over time, the symptoms worsen and quality of life suffers. Eventually, the disease wins, breathing fails, and so does the patient."


Since that hospital episode, I overwhelmed with a deep sense of uncertainty over my future . In 1990 as I was starting college, I was diagnosed with a deformed right mitral valve. My cardiologist said that somehow, just like my right leg, my heart had found a way to function with it and that for the time being it was unnecessary to perform surgery. He just recommended that I had this monitored every few years. I decided to forget about it then in order not to over worry.

Over the years, I have noticed that every infection or disease I have ever faced affects disproportionally my right side, whether they be skin or teeth irritations or else

And then I read this which suggest how much more blacks are likely to face early heart failure
http://www.washingtonpost.com/wp-dyn/content/article/2009/03/23/AR2009032301802.html

The conjunction of racial predisposition and post polio weakness makes me worry...

If anyone has any thoughts on the subject they want to share..please do....